Sunday, July 12, 2009

Medicine Warning! Watch out for TOPAMAX!

Just a warning for everyone who might be prescribed Topamax as a prophylactic for migraines -- BE VERY CAREFUL IF YOU USE IT!

I (Bobbie) was prescribed Topamax to help prevent migraines (the doctors at the Navy Hospital here in Yokosuka say that migraines occur more frequently, and more severely, in Japan). A little known side-effect of this medicine is severe weight loss. A more common side effect is general stupidity -- the medicine's nickname is "Dopamax."

Side Effect 1: Weight loss
Over the course of 5 months, my weight dropped from approx. 120 lbs. to 97 lbs (I am 5'7" tall). At first, I just thought I was losing weight because I do so much walking here in Japan. The first doctor I saw told me that "everyone loses weight when they come here" (that's when I weighed about 110 lbs.). The next doctor (who I saw when I weighed about 102 lbs.) told me it was hormones (unlike most women over 40 whose hormones cause them to gain weight) and also told me there was nothing they could do for me unless I was not able to keep my weight at or above 100 lbs. When I continued to lose weight and tried AGAIN to have someone help me, they sent me to see a psychiatrist to make sure I was not anorexic!

It was a very frightening time -- I thought there must be something terribly wrong with me and the doctors were just not finding it. The worst part was feeling as though no one was listening and, instead, that they had made up their minds that I was doing it to myself. I thank those people who listened,were concerned for me, and knew I wasn't doing this.

It wasn't until I went to Danny's doctor that the connection was made. She ran a litany of tests (unlike the prior doctors who only checked my thyroid) but she hit on the Topamax angle immediately. She weaned me off of the medicine (discontinuing it abruptly can cause seizures) and, within one month, I gained 13 lbs. I can't thank this woman enough.

SIde Effect 2: Stupidity
I also got this one! Ric thought I was getting early-onset Alzheimer's! Of course, I didn't even realize this had happened (obviously, my brain was not functioning)!

Lesson

BE VERY CAREFUL IF YOU ARE PRESCRIBED TOPAMAX! "Google" the medicine to find "real people" reviews. Here's a link to one site: www.askapatient.com. Type in the name "Topamax" and then click on the link for the medicine (not the "sprinkles" one). You'll see a HUGE number of negative reviews -- believe them!

1 comment:

Valerie said...

Wow, Roberta, scary. . .glad to hear you found at least one doctor who wasn't just writing your symptoms off as "a girl thing."